Why I live-tweeted a day with ME/CFS, Lyme disease, Endometriosis and Fibromyalgi

Why I took to twitter to live-tweet a day in the life of ME/CFS, Endometriosis, Lyme Disease and Fibromyalgia

I recently ran an experiment where I live-tweeted my day. I ended up sharing symptoms and struggles I haven’t before…

“This is a brilliant idea!” I said to myself. I’d been looking for a way to do something for ME awareness this year without doing myself in like I normally do. I’d come up with the idea of live tweeting a day in the life of ME/CFS (and my other illnesses: Lyme disease, Endometriosis and Fibromyalgia).

I saw it as a kind of experiment, to make me think about and share things that have become a normal part of life for me but might surprise others. Turns out, there was another element to this I hadn’t considered: how much of my energy is taken up by a tweet?

One tweet= not so much. A series of tweets in quick succession= a lot. By the time of my first nap, which was an hour and a half after getting up, I felt like quitting. I kept going at a gradually dwindling pace. By lunchtime I realise don’t I couldn’t continue a this pace so sent out the occasional tweet instead.

And at dinner I stopped. Much like in my “Day in the Life of ME” video diary I made a few years ago, I was too exhausted by dinner to continue. Both records of my day stop when I go to eat.

But hopefully it is still an interesting account of what my day is like with ME/CFS, Lyme Disease, Endometriosis and Fibromyalgia. You can see it below, or click through to the story I made of along the tweets from the day on twitter.



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Why I live-tweeted a day with ME, Endometriosis, Lyme disease and fibromyalgia


Laura Chamberlain

Laura is a writer blogging about living with chronic illness, namely Lyme Disease, Myalgic Encephalomyelitis (ME/CFS) and Fibromylagia.

She likes food, cats, bad jokes. Unfortunately, her boyfriend is allergic to the last two...

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