Laura’s Pen lists ten things that become normal when you’re chronically ill, which really aren’t normal, such as having to rest …
But you don’t look sick?! – A letter on why I hide my illness
Laura’s Pen’s open letter to people who say: “But you don’t look sick,”, explaining why she hides her illness… Dear …
Ten things I wish I knew when I first became chronically ill
When you first get ill, it’s scary. You’re used to going to the doctor and them quickly being able to tell you what’s wrong. But with most illnesses that become chronic, this is not the case, you go through a long period of anxiety…
Why you shouldn’t judge a disability by its visibility
I wanted to share a Facebook post that has been doing the rounds this week about a woman called Lauren …
Calling all UK people with ME and ME allies. I need 30 seconds of your time.
Update: this petition is closed but there’s a new petition to try and get the lack of effective treatment options …
My friend is raising money for Action for ME and RNLI
Just a quick post to say my lovely friend Rachel is running/swimming/cycling a triathlon in a couple of weeks and …
Chronic illness and the loss of self
Laura’s Pen shares her story of the loss of self and grief she experienced when she became chronically ill, and …
ME Awareness: If we were cured tomorrow, what would we do?
Today, 12 May 2015, is ME Awareness day. Last year, I gave you a glimpse into my life with this …
ME/ CFS sufferers may “fear exercise” but there’s good reason for that
So I put this on Facebook and then remembered that I have a very lonely neglected blog. But here you …
A day in the life of M.E.
Tomorrow is ME awareness day. I have made a video diary of one “normal day” to try and show those who know …